The Ontario government has approved Elaprase for boys and men affected by the non-neurological form Hunter Syndrome! Treating Hunter Syndrome in boys with CNS involvement is controversial and it is unfortunate they have decided not to treat this group, but that they have approved Elaprase for any group is a huge step in the right direction and absolutely fantastic news!! The relief these affected families must feel… it is awesome news for these families and all families in Canada affected by Hunter Syndrome and all rare diseases. It is a day to celebrate!! Congratulations and thanks to everyone who helped us get here!!!!!!
