Hunter Syndrome 28 Mar 2011 Once Upon a Cure, a Gala for Hunter Syndrome Research Just like Alice plunged into Wonderland, all families diagnosed with MPS II are plunged into a world previously unknown to them that they must learn to navigate. Just like Alice, this world… mcfadyena
Hunter Syndrome 28 Mar 2011 Heading back to North Carolina After a long wait, we have been asked to come back for final qualifying tests for the IT trial at UNC. We will be going back for the week of… mcfadyena 1 Comment
Hunter Syndrome 18 Mar 2011 Dr. Lloyd-Evans Grant Funded!! We have funded a $50,000 research grant to Dr. Emyr Lloyd-Evans at the University of Cardiff. Below is a summary of the research he is conducting: "We are aiming to… mcfadyena 1 Comment
