Hunter Syndrome 23 Jan 2014 An Open Letter to Shire CEO Flemming Ornskov Before I get on with the letter that Jamie and Jason Fowler hand delivered to Flemming Ornskov at their brief meeting in Chicago last Saturday, January 18 (more can be… mcfadyena 1 Comment
Hunter Syndrome 19 Jan 2014 Hope, Sweat & Breathe- A Yoga Fundraiser for the MPS II Research Fund Details of Hope, Sweat & Breathe: Doors open at 12pm 12:30-1:15pm Vinyasa Yoga with Mike Nichols 1:30-2:15pm Vinyasa Yoga with Chris Duggan 2:30-3:15 Restorative Yoga with Lindsay Collins 3:30-4:15pm Family… mcfadyena 1 Comment