Hunter Syndrome 23 Dec 2012 Holiday Thoughts This time of year always brings forth emotion. Mine has been brewing for a bit, but with only two sleeps away from Santa, it's now here. Our kids are SO… mcfadyena 2 Comments
Hunter Syndrome 12 Dec 2012 The Journey of Hope This morning Trey received his fifteenth dose of intrathecal enzyme at UNC. This evening I watched a video made by the National (US) MPS Society called 'The Journey of Hope' that… mcfadyena 2 Comments
