November 24, 2010 mcfadyena

Here we go again… UNC

We’re off for another trip to UNC to have Trey’s development tested as part of the screening study for the MPS II intrathecal trial. Our test dates are January 11 & 12. As per usual, there are a lot of hopes & fears attached to this trip, so I’m not going to say more at this point. Just thought I’d keep those interested updated.

CONTACT US AND SHARE YOUR STORY!

We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!