Or at least around North America. The below link leads to an article about a family who has become very very close to me. Jen, Tripp, Aidan and Avery Carter. I’ve commented to and about Jen and Aidan many times in my blog. Jen and I connected first because her son was also diagnosed with Hunter Syndrome. We’ve stayed connected, I think, because we have similar values in how we think about and fight for this disease. In this article, by raising awareness and funds for research, fighting is what she is doing. For Aidan’s life. Way to go Jen!
http://www.seacoastonline.com/articles/20110118-NEWS-101180353
