December 8, 2010 mcfadyena

PS Heartbreak

A fellow camera operator friend posted the paragraph below in response to one of my blogs. I think it deserves its own blog. Thank you to Chris and Jake, and all involved, for helping spread awareness and raise funds for Hunter Syndrome Research. Thank you for your generosity and taking time out of your life for our cause. It means so so much to us:
Please check out our video on You Tube “PS Heartbreak” that we pledged our services to help raise awareness for MPS. I am also working with Kirsten Harkins to put together a NSWC challenge hockey game of H4 kids versus moms to also help raise funds and awareness of MPS. We might need equipment for moms to borrow and also looking for pledges to raise funds.


We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!