For those of you who do check in here periodically to see how we’re doing and what’s going on, Ryan, Trey and I are leaving on Saturday, August 14 for North Carolina, for the screening portion of a the intrathecal Elaprase trial. Trey will have a physical, hearing and vision tests on Tuesday, August 17 and neurocognitive tests on Wednesday, August 18. We will find out results and return home on Thursday, August 19. Criteria for the trial has recently changed, so if you’re interested in details, please give me a shout: dcehak@telus.net.
