July 10, 2009 mcfadyena

Simon Ibell: The making of a health-care crusader

Our hero, Simon Ibell, is once again in the news. This time the article is about Simon and his life growing up with Hunter Syndrome. I’ve heard most of the stories, but I enjoy hearing them again and again. They remind me how to advocate for and believe in my son. Simon and Marie are my example of how awesome life can and will be for Trey and our family. If Simon and Marie have and can make it through these bumps in the road, so can we. Click here to read the article.


We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!