11 May 2009
Hunter Syndrome
May 11, 2009 mcfadyena

Rare Disease Article in BC Parent Magazine


An article I wrote about the situation with rare diseases in Canada is in the most recent edition of BC Parent Magazine. Click here to read the article.

CONTACT US AND SHARE YOUR STORY!

We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!

OUR ADDRESS

  • 5291 County Rd. 30
    Campbellford, ON
    K0L 1L0
  • (604) 317-3911
  • purcelldeb@gmail.com
  • www.theisaacfoundation.com/MPSII/
  • Charitable Business Number: 80693 0079 RR0001

Drop over to our social media streams to keep updated on the latest MPS news in Canada, including updates on research projects funded throughout the year. We'll also share your stories on our feeds and share news reports from throughout Canada!

 

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