The Ontario government has approved Elaprase for boys and men affected by the non-neurological form Hunter Syndrome! Treating Hunter Syndrome in boys with CNS involvement is controversial and it is unfortunate they have decided not to treat this group, but that they have approved Elaprase for any group is a huge step in the right direction and absolutely fantastic news!! The relief these affected families must feel… it is awesome news for these families and all families in Canada affected by Hunter Syndrome and all rare diseases. It is a day to celebrate!! Congratulations and thanks to everyone who helped us get here!!!!!!
-
Recent Posts
Archives
- September 2023
- December 2022
- June 2022
- October 2020
- August 2020
- December 2019
- June 2019
- May 2019
- March 2019
- December 2018
- May 2018
- April 2018
- March 2018
- December 2017
- October 2017
- June 2017
- May 2017
- February 2017
- October 2016
- May 2016
- February 2016
- July 2015
- June 2015
- February 2015
- December 2014
- November 2014
- September 2014
- June 2014
- May 2014
- March 2014
- January 2014
- December 2013
- November 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- December 2012
- November 2012
- October 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
- February 2012
- January 2012
- December 2011
- November 2011
- October 2011
- September 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
- March 2011
- February 2011
- January 2011
- December 2010
- November 2010
- August 2010
- July 2010
- June 2010
- May 2010
- April 2010
- March 2010
- February 2010
- January 2010
- September 2009
- August 2009
- July 2009
- June 2009
- May 2009
- April 2009
- March 2009
- February 2009
- January 2009
- December 2008
- November 2008
- October 2008
- August 2008
- July 2008
- June 2008
- May 2008
- April 2008
- February 2008
- January 2008
- December 2007
- November 2007
- October 2007
- September 2007
- August 2007
- July 2007
- June 2007
- May 2007
- April 2007
- March 2007
- February 2007
- January 2007
- December 2006
- November 2006
- October 2006
- September 2006
- July 2006
Categories
Meta
CONTACT US AND SHARE YOUR STORY!
We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!
OUR ADDRESS
- 5291 County Rd. 30
Campbellford, ON
K0L 1L0 - (604) 317-3911
- purcelldeb@gmail.com
- www.theisaacfoundation.com/MPSII/
- Charitable Business Number: 80693 0079 RR0001
Drop over to our social media streams to keep updated on the latest MPS news in Canada, including updates on research projects funded throughout the year. We'll also share your stories on our feeds and share news reports from throughout Canada!