June 1, 2007 mcfadyena

Surgery, check ups, Steve Nash

Trey had surgery on May 24 for both his inguinal and umbilical hernias. Since a slight temperature and trip to the hospital the next day to make sure everything was okay, everything has been fine. Trey was in quite a bit of pain for the first few days, which was hard to watch, as I’ve never seen him take so long to recover before (although he’s never had a surgery like this before either), but he’s now back to his usual self and everything looks great.
In the past 2 weeks, Trey has also seen rheumatology, ENT, opthalmology, and cardiology. Rheumatology didn’t have anything monumental to say, they just referred us to a PT and OT (physiotherapist and occupational therapist) who specialize in joints. We should be seeing them in a few weeks. I will also find out more about splints for Trey’s ankles and elbows at that time. As far as ENT goes, Trey’s ear tubes look great. They’re still fully in and they’re not plugged, which is great because Trey’s last set of tubes did not last nearly this long. Wonder if it’s the ERT or … Opthalmology also went well. Trey’s corneas and retinas are in good shape. No problems. We’ll see them again in a year, and with regards to cardiology, Trey had a echocardiogram and electrocardiogram, but we have not yet heard about the results. And last but not least, Trey’s weekly infusions are still going well, nothing to report. This past week he had infusion #17.
I have also attached a link for an article in the Arizona Republic newspaper on May 22 about our good friend and inspiration, Simon Ibell and his good friend Steve Nash. To read it, click on the link: http://www.azcentral.com/arizonarepublic/sports/articles/0513youngcp0513.html.


We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!