May 3, 2007 mcfadyena

My part in the launch of Elaprase

I have agreed to be a part of the launch of Elaprase in Canada. Elaprase should be approved by Health Canada in mid June. Not only am I completely pleased to help, as Shire and Elaprase and all involved have given Trey a new chance at life, but Elaprase being approved by Health Canada is a big deal because there are still many boys in Canada who have not been able to start Elaprase yet. We need to advocate for them until it is they are hooked up for infusions. The feeling of having Trey on Elaprase and seeing what a difference it is making… I can sleep at night.


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