April 23, 2007 mcfadyena

Infusion #12 is done!!!

Infusion #12 is done!!! We (read: Trey) has made it through the riskiest time of infusions without reaction! Although serious reactions can happen up until the six month mark (after six monthes, minor reactions can occur, but nothing serious), the highest chance for an allergic reaction to Elaprase is between infusion #4 and infusion #12. What a great way to celebrate Tacos for Trey.
There was an excellent article in this past Saturday’s Ottawa Citizen about the lack of Orphan Drug Policy in Canada. It featured family friends of ours who we met at the last Canadian MPS Conference, the Lanese’s. There is also an article about our good friends from Campbellford, Ontario, the McFadyen’s. To read it, click on the link: http://www.rogercollier.com/clipping.feature.20.citizen.observer.orphan.drugs.html
In other news, we have planned another trip to North Carolina to see Dr. Escolar for another development test. We will be heading down to UNC in mid to late May. May is full of doctors appointments for us. Trey will see orthopedics, ENT, rheumatology, and Trey will also be having surgery on both his inguinal and umbilical hernias at the end of May. We look forward to May, but I think we will be ready for June when it comes.


We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!