A bandaid. Hmmmmmm.
Some new considerations have entered our world. A mom whose son was recently diagnosed with Hunter’s Syndrome has gotten me onto Cord Blood Transplants (CBT). It’s a relatively new procedure over which there is some controversy. It is controversial because doctors have stopped doing Bone Marrow Transplants (BMTs) on children with Hunter’s. BMT’s did not work (they don’t break the Blood Brain Barrier), but new research suggests there may be some promise in CBT (and breaking the BBB). I really don’t know a lot about it at this point, but since the hub of CBT’s is at Duke, right near UNC, where we’re going to see Dr. Muenzer anyway, we figure it is worth looking into. Since my mind is spinning after a night of no sleep and I figure you’ve had enough abbreviated words for the moment, I will say goodbye and promise to update soon.