Hunter Syndrome 10 Jun 2007 The MPS Cup On a positive note, last night was the MPS Cup. It was so much fun. In the afternoon we attended the Fantasy hockey game where friends and family came to… mcfadyena
Hunter Syndrome 09 Jun 2007 A Sad Day Last night I received an email that my good friend, Amy Donaldson, had passed away that morning. She died after a hard battle with cancer. I was first introduced to… mcfadyena
Hunter Syndrome 05 Jun 2007 BCCHF Miracle Weekend, MPS Cup & I'm preggers! This past weekend, Trey, Ave, Ry and I participated in the BC Children’s Hospital Foundation Miracle Weekend. It was an amazing event with tons of stuff for the kids to… mcfadyena
Hunter Syndrome 01 Jun 2007 Surgery, check ups, Steve Nash Trey had surgery on May 24 for both his inguinal and umbilical hernias. Since a slight temperature and trip to the hospital the next day to make sure everything was… mcfadyena
Hunter Syndrome 21 May 2007 What a Few Words Can Do Dr. Escolar. I have been thinking about this appointment for a long time. She’s basically (in my mind) the woman you go see to find out if your child is… mcfadyena
Hunter Syndrome 08 May 2007 Orthopedics & Infusion #14 Today was long and frustrating at first, but nothing bad happened, so it turned out to be a good day. We arrived at the MDU at 7:30am. Trey still had… mcfadyena
Hunter Syndrome 06 May 2007 What a Day Our Tacos for Trey fundraiser yesterday was awesome. It was as close to perfect as a first annual fundraiser could be. Where to start...I’ll go in order. First off, we… mcfadyena
Hunter Syndrome 03 May 2007 An Eventful Infusion Week. #13 Alright...infusion #13. Trey developed a runny nose over the weekend, but we went to the hospital on Monday anyways because he had no other symptoms. They cancelled his ERT for… mcfadyena
Hunter Syndrome 03 May 2007 My part in the launch of Elaprase I have agreed to be a part of the launch of Elaprase in Canada. Elaprase should be approved by Health Canada in mid June. Not only am I completely pleased… mcfadyena
Hunter Syndrome 23 Apr 2007 Infusion #12 is done!!! Infusion #12 is done!!! We (read: Trey) has made it through the riskiest time of infusions without reaction! Although serious reactions can happen up until the six month mark (after… mcfadyena
