Hunter Syndrome 18 Mar 2011 Dr. Lloyd-Evans Grant Funded!! We have funded a $50,000 research grant to Dr. Emyr Lloyd-Evans at the University of Cardiff. Below is a summary of the research he is conducting: "We are aiming to… mcfadyena
Hunter Syndrome 07 Feb 2011 Five grant application received!! Last Monday, January 31 was the deadline for applications for our $50,000 MPS II Research grant. Since the beginning of our fund in 2007, we've never received more than 2… mcfadyena
Hunter Syndrome 18 Jan 2011 Raising awareness around the world Or at least around North America. The below link leads to an article about a family who has become very very close to me. Jen, Tripp, Aidan and Avery Carter.… mcfadyena
Hunter Syndrome 13 Jan 2011 IQ qualified Trey's IQ qualified him to move into further qualifying assessments for the IT trial, that puts a concentrated form of the enzyme his body is missing, directly into the brain.… mcfadyena
Hunter Syndrome 11 Jan 2011 Sleep? Not in North Carolina. No matter now hard I try to relax, and no matter how calm I am or think I am going into one of these trips, when I am here, I… mcfadyena
Hunter Syndrome 10 Jan 2011 Distraction My family and friends who are close enough to know the day to day goings on in my life often hassle me for taking on too much. Today made me… mcfadyena
Hunter Syndrome 16 Dec 2010 A flight with Santa Yesterday was an AMAZING day. Since Trey was diagnosed, we've participated in many events for the BC Children's Hospital Foundation: Miracle Weekends, radio and television interviews, the Festival of Lights,… mcfadyena
Hunter Syndrome 08 Dec 2010 PS Heartbreak A fellow camera operator friend posted the paragraph below in response to one of my blogs. I think it deserves its own blog. Thank you to Chris and Jake, and… mcfadyena
Hunter Syndrome 05 Dec 2010 MPS II Research Grant – Request for Applications The Canadian MPS Society is requesting applications for its $50,000.00 2011-2 Research Grant for research into MPS II (Hunter syndrome). This grant will be funded through the Society's MPS II… mcfadyena
Hunter Syndrome 24 Nov 2010 Here we go again… UNC We're off for another trip to UNC to have Trey's development tested as part of the screening study for the MPS II intrathecal trial. Our test dates are January 11… mcfadyena
