Hunter Syndrome 08 Nov 2007 A Sister for Trey & Avery & UNC On Tuesday, October 30, Trey and Avery’s baby sister, Sadie, was born in the water at home into the arms of her dad. I began having contractions at 4:30am, but… mcfadyena
Hunter Syndrome 02 Oct 2007 Tube surgery, PT, private Elaprase funding Trey had a successful tube surgery yesterday morning. Both of his previous tubes were out, so Dr. Moxham replaced them with permanent T-tubes. His left ear had some thin fluid… mcfadyena
Hunter Syndrome 01 Oct 2007 Tube Surgery #3 Tube surgery #3, General Anesthetic #7. I’ve never had one. This is what I was thinking as my kid was crying in my arms when I was in the recovery… mcfadyena
Hunter Syndrome 19 Sep 2007 Thanks Stargate!! First, I will get the bad news out of the way. Ontario still will not fund Elaprase for Andrew Lanese, a boy with MPS II whose family has been fighting… mcfadyena
Hunter Syndrome 06 Sep 2007 Yeah, Frustrated Where to start. I think a lot of it is due to the fact that I have very little energy being 32 weeks pregnant and all, but I think I’m… mcfadyena
Hunter Syndrome 21 Aug 2007 Our Trooper I am blown away by the difference in Trey from his last hernia surgery to this one. Three monthes ago, when he had surgery for his umbilical and left inguinal… mcfadyena
Hunter Syndrome 07 Aug 2007 A Whole Bunch of Stuff We spent the last part of June, all of July, and the first part of August at my mom’s and grandma’s cabins at Cultus and Okanagan Lake, which is why… mcfadyena
Hunter Syndrome 11 Jul 2007 Conversation with Dr. Stockler As I mentioned in the News section, Dr. Stockler came to visit us at the MDU during Trey’s infusion on Monday. We discussed Trey’s recent series of tests as well… mcfadyena
Hunter Syndrome 07 Jul 2007 MPS Society Press Release for Elaprase MPS Society Welcomes New Enzyme Replacement Therapy for Rare Genetic Disease – MPS II (Hunter syndrome) Elaprase ™ offers hope for children and adults with MPS II (Hunter syndrome) (Vancouver,… mcfadyena
Hunter Syndrome 21 Jun 2007 Elaprase approval, ultrasound, cardiology Elaprase has been approved by Health Canada!! This is a huge step because it means that Elaprase is now accessible to all people in Canada affected by Hunter Syndrome. It… mcfadyena
