Hunter Syndrome 18 Dec 2008 Carpal Tunnel Release Yesterday, I came into the kitchen and Trey was telling Laurel that tomorrow the surgeon’s were going to fix his hands so they feel better. He was going to go… mcfadyena
Hunter Syndrome 09 Dec 2008 Trey will be having his carpal tunnel release surgery for both his left and right hands next Thursday, December 18. Trey will be having his carpal tunnel release surgery for both his left and right hands next Thursday, December 18. I got a call from the wonderful plastic surgery receptionist… mcfadyena
Hunter Syndrome 09 Dec 2008 Full of Thanks I was going to keep my write up about our meeting with the government short, but as I began to write, I didn’t want to stop. And now I’m on… mcfadyena
Hunter Syndrome 21 Nov 2008 I had an appointment with Dr. Stockler today, so have many updates! I had an appointment with Dr. Stockler today, so have many updates! Since diagnosis, Trey has had 3 cardiology appointments (echo and EKG’s). The first results were normal. In January… mcfadyena
Hunter Syndrome 04 Nov 2008 A local parenting and family magazine, West Coast Families, featured an article about Trey. A local parenting and family magazine, West Coast Families, featured an article about Trey. Click on the thumbnail, left, to read the story. We received a bit of information about… mcfadyena
Hunter Syndrome 28 Oct 2008 Trey had his follow up hearing test yesterday. Trey had his follow up hearing test yesterday. The really exciting news for me is how well Trey did in the hearing booth. My mom was with him and said… mcfadyena
Hunter Syndrome 28 Oct 2008 Felt the Urge I usually get the urge to write after I receive news about Trey. This time the news was that Trey has carpal tunnel syndrome (CTS). After hearing Dr. Muenzer speak… mcfadyena
Hunter Syndrome 21 Oct 2008 In the past month and a half, Trey has had a number of tests, none of which I was really expecting. In the past month and a half, Trey has had a number of tests, none of which I was really expecting. May is usually our busy testing month. However, starting… mcfadyena
Hunter Syndrome 29 Aug 2008 The Ontario government has approved Elaprase for boys and men affected by the non-neurological form Hunter Syndrome! The Ontario government has approved Elaprase for boys and men affected by the non-neurological form Hunter Syndrome! Treating Hunter Syndrome in boys with CNS involvement is controversial and it is… mcfadyena
Hunter Syndrome 23 Aug 2008 Tacos for Trey tallies are in! Since April 1st, the MPS II Fund has received more than $57,000 - over $32,000 was raised through Tacos for Trey and another $25,000 through an anonymous donation. A very… mcfadyena
