Hunter Syndrome

While we were at Disney World on Trey's Make-a-Wish trip, we missed The Isaac Foundation Gala on November 15. It is a really important event for us and we were sad…

We went on Trey’s Make-a-Wish trip to Disney World and stayed at Give Kids the World in Florida this past week. I found out a few days before we left…

Over the past years we have funded a number of MPS II Gene Therapy Research projects, you can read about them here. We have also received a number of questions…

I have justifiable OCD (Obsessive Compulsive Disorder). My son is alive and thriving due to my obsessive and compulsive cleanliness and germ phobia. I am fully aware that at times,…

This is Trey & his new service dog, Griffin. Griffin gets to go to hospital appointments, UNC, therapy appointments, swimming lessons and everywhere in between with Trey! I felt it…

MPS II threw my life upside down. When Ryan and I were pregnant with our first baby, Trey, our midwife told us that although we wouldn’t want to, we should…

Dear MPS II Research Fund Supporters, Happy Spring!! Thank you again, so so much for your support of our Hope, Sweat and Breathe Yoga Fundraiser on March 1. With donations…

This picture was taken 10 years ago Saturday, on the day of Trey's birth. Wow. Saturday was a big day: Hope, Sweat & Breathe, our yoga fundraiser on Trey’s 10th…

Before I get on with the letter that Jamie and Jason Fowler hand delivered to Flemming Ornskov at their brief meeting in Chicago last Saturday, January 18 (more can be…

Details of Hope, Sweat & Breathe: Doors open at 12pm 12:30-1:15pm Vinyasa Yoga with Mike Nichols 1:30-2:15pm Vinyasa Yoga with Chris Duggan 2:30-3:15 Restorative Yoga with Lindsay Collins 3:30-4:15pm Family…