Hunter Syndrome 26 Sep 2014 Germ Season I have justifiable OCD (Obsessive Compulsive Disorder). My son is alive and thriving due to my obsessive and compulsive cleanliness and germ phobia. I am fully aware that at times,… mcfadyena
Hunter Syndrome 05 Sep 2014 It's Been a While This is Trey & his new service dog, Griffin. Griffin gets to go to hospital appointments, UNC, therapy appointments, swimming lessons and everywhere in between with Trey! I felt it… mcfadyena
Hunter Syndrome 23 Jun 2014 Gene Therapy and The Scotiabank 5K & 1/2 Marathon!! MPS II threw my life upside down. When Ryan and I were pregnant with our first baby, Trey, our midwife told us that although we wouldn’t want to, we should… mcfadyena
Hunter Syndrome 01 May 2014 The Scotiabank 1/2 Marathon and 5K on June 22, 2014 Dear MPS II Research Fund Supporters, Happy Spring!! Thank you again, so so much for your support of our Hope, Sweat and Breathe Yoga Fundraiser on March 1. With donations… mcfadyena
Hunter Syndrome 03 Mar 2014 Hope, Sweat & Breathe: March 1, 2014 This picture was taken 10 years ago Saturday, on the day of Trey's birth. Wow. Saturday was a big day: Hope, Sweat & Breathe, our yoga fundraiser on Trey’s 10th… mcfadyena
Hunter Syndrome 23 Jan 2014 An Open Letter to Shire CEO Flemming Ornskov Before I get on with the letter that Jamie and Jason Fowler hand delivered to Flemming Ornskov at their brief meeting in Chicago last Saturday, January 18 (more can be… mcfadyena
Hunter Syndrome 19 Jan 2014 Hope, Sweat & Breathe- A Yoga Fundraiser for the MPS II Research Fund Details of Hope, Sweat & Breathe: Doors open at 12pm 12:30-1:15pm Vinyasa Yoga with Mike Nichols 1:30-2:15pm Vinyasa Yoga with Chris Duggan 2:30-3:15 Restorative Yoga with Lindsay Collins 3:30-4:15pm Family… mcfadyena
Hunter Syndrome 25 Dec 2013 Wishing for a Christmas Miracle When I watched this, I just kept thinking: 'This is a life. This is a life that could be saved.' No matter how different the MPS parent's life is from… mcfadyena
Hunter Syndrome 18 Dec 2013 Shire Willing to Let Jack Die Shire denied Jack life-saving treatment. They first said no last Thursday, at which point The Isaac Foundation implored them to reconsider. They said no again this past Monday. You can… mcfadyena
Hunter Syndrome 02 Dec 2013 Help us Save Jack's Life Jamie Fowler is one of my closest friends in the world. I feel her in my heart and my soul. I love her. Her partner is Jason and they have… mcfadyena
