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10 Aug 2014

New therapy helps London teen with ‘ultra-rare’ disorder

Air Canada Centre, May 8, 2014 – Game four of the first-round playoff tilt between Original Six rivals the Toronto…

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Verica Gacic, sits with her son, 14-year-old Stefan Gacic, who suffers from a rare genetic disorder called Morquio A syndrome, in London, Ont.

23 Jul 2014

Drug brings hope for teen battling rare disorder

A new drug is giving new hope to a London teen battling a rare and serious metabolic disorder. Stefan Gacic…

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Stefan Gacic shows the leaps of progress he’s made with Morquio A by displaying his ping-pong skills. JUSTIN FORD/Special to the Londoner

18 Jul 2014

A London boy’s fight with rare disease

Stefan Gacic’s lifelong struggle with an extremely rare genetic disorder has become easier to deal with since being introduced to…

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Angelle Bourdon and her daughter Melanie got the rare opportunity to meet another person with Morquio Syndrome earlier this summer, Jaime Adams (right). Adams was born in 1977 and diagnosed before she turned four years old.
SUBMITTED PHOTO — Angelle Bourdon and her daughter Melanie got the rare opportunity to meet another person with Morquio Syndrome earlier this summer, Jaime Adams (right). Adams was born in 1977 and diagnosed before she turned four years old. SUBMITTED PHOTO

18 Jul 2014

Hold on to your dreams – Adult living with Morquio meets Cornwall-area child

A small Cornwall girl with a rare disease found a kindred spirit last week. After a newspaper article ran about…

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14 Jul 2014

RQMO applauds Health Canada’s approval of first treatment for Morquio A syndrome

First approved treatment for patients and families in Quebec living with ultra-rare, severely debilitating and progressive disease MONTREAL, July 14, 2014 /CNW Telbec/ -…

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07 Jul 2014

Health Canada Approves Vimizim to Treat Rare Disease

First Ever Treatment For Morquio A Syndrome; Advocacy Group Calls For Expedited Access For Patients Throughout Canada Sufferers of Morquio…

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© Photo source: Morquio Family Tree Facebook page Melanie Bourdon, 11.

14 May 2014

Morquio Family Tree fundraising for rare disease

CORNWALL, Ontario - Two brave local children diagnosed withMorquio Syndrome will be putting a face on the rare disease wreaking havoc on…

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Zane and Luke Braun of the Wingham area are trying an experimental treatment for Morquio syndrome.

24 Dec 2013

Brothers with rare condition trying experimental treatment in Toronto

Two brothers from the Wingham area, diagnosed with a rare disease, are hoping to add some years to their lives.…

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Zane Braun of Whitechurch suffers from Morquio A Syndrome, a rare genetic disorder that will shorten his life. The drug will potentially decrease the amount of sugars in their bodies and hopefully will slow down the progression of the disease. Luke and Zane Braun are seen enjoying some Christmas cheer.

17 Dec 2013

Drug trial for Whitechurch family a sign of new hope

The last 121 weeks for Luke (16) and Zane (14) Braun of Whitechurch have been positive in the eyes of…

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11 Dec 2013

New drug treatment offers boys a future

When Debbie Braun’s sons, Lucas, 16 and Zane, 14, were first diagnosed with Morquio A syndrome (also known as…

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