Hunter Syndrome 29 Mar 2009 Trey is on the Cover of West Coast Families Trey is on the cover of the April issue of West Coast Families magazine and information about our up coming fundraiser, "Time for a Cure" is inside. To view a… mcfadyena
Hunter Syndrome 23 Mar 2009 Cardiology & Increased Rate Trey had an echo, ECG and visit with a cardiologist today, Dr. Human. Although Trey has had a number of heart tests in the past, this is our first visit… mcfadyena
Hunter Syndrome 19 Mar 2009 Trey had an audiology appointment today Trey had an audiology check up today. His hearing is about the same as it was at his last check up in December. To give you an idea of where… mcfadyena
Hunter Syndrome 16 Mar 2009 Speaking of Children A story about Trey is in the Spring 2009 issue of "Speaking of Children," a magazine published three times a year by the BC Children's Hospital Foundation. Click here to… mcfadyena
Hunter Syndrome 04 Feb 2009 It took three tries to get Trey accessed on Monday, the first time using his new VAD. It took three tries to get Trey accessed on Monday, the first time using his new VAD. The first time, Trey’s nurse, the head of the Medical Day Unit where… mcfadyena
Hunter Syndrome 04 Feb 2009 Two Anniversaries On Monday, February 2, we had a party at BC Children’s hospital to mark two years of Trey being on Enzyme Replacement Therapy. For the boys it meant cupcakes, lots… mcfadyena
Hunter Syndrome 29 Jan 2009 Trey is home from his VAD surgery and doing well. Trey is home from the hospital and doing well. We got a call from the hospital this morning asking us to come in earlier, so we were at the hospital… mcfadyena
Hunter Syndrome 22 Jan 2009 Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. Trey’s VAD replacement surgery is this Monday, January 29, 2009 at 2:00pm. His VAD lasted almost exactly two years. I have an appointment tomorrow with the pediatric general surgeon to… mcfadyena
Hunter Syndrome 20 Jan 2009 Bad news first. Trey needs a new VAD. Bad news first. Trey needs a new VAD. Usually, when Trey is hooked up for infusions, he sits and watches TV. He barely even notices the needle or when the… mcfadyena
Hunter Syndrome 13 Jan 2009 We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. We had Trey’s yearly check up this morning with the Orthopedic Clinic at BC Children’s Hospital. Trey was amazing. He had six X-rays of his neck and back done over… mcfadyena
