Hunter Syndrome 03 Nov 2010 Shanti, Shanti, Shanti It's Sanskrit and it means 'Peace, peace, peace.' For four and a half years, while I was wondering and waiting to find out whether Trey would take one path, lose… mcfadyena
Hunter Syndrome 24 Aug 2010 Despair To give you an idea of where this is coming from, Dr. Muenzer told me that if this IT drug had already been proven safe and effective, he would treat… mcfadyena
Hunter Syndrome 19 Aug 2010 No real answers Well, we got Trey's results. Although his score jumped 8 points from April's tests, when Trey was sick, he did drop 3 points from his tests last July. So, he… mcfadyena
Hunter Syndrome 19 Aug 2010 No news yet, just emotions A friend sent me this, and especially given the news we are expecting today, it means even more: 'I loved you the minute I knew I was pregnant. I loved… mcfadyena
Hunter Syndrome 28 Jul 2010 UNC trip coming up For those of you who do check in here periodically to see how we're doing and what's going on, Ryan, Trey and I are leaving on Saturday, August 14 for… mcfadyena
Hunter Syndrome 14 Jun 2010 Cardiology Check-up After a long and exhausting and draining (and sick, for me) day, we found out that Trey's EKG and echocardiogram from today are indistinguishable (doctors words) from March 2009's tests.… mcfadyena
Hunter Syndrome 22 May 2010 We did it!!!!! $40,000 We raised $40,000 with our "Tacos for Trey" fundraiser. The specific number is $38,904.91. However, there is $700 that still needs to be collected from the event and we have… mcfadyena
Hunter Syndrome 12 May 2010 T4T Photos Click the link to check out hundreds of photos from T4T 2010. Thanks for shooting the event, Michele!! mcfadyena
Hunter Syndrome 09 May 2010 $24,800 That's how much we raised. The first year we raised $17,000 on the day, the second year we raised $18,000, yesterday we raised $24,800. Very very cool. I am happy.… mcfadyena
Hunter Syndrome 09 May 2010 Tacos for Trey success profiled on Wormhole Riders Check out the link: http://www.wormholeriders.com/blog/?p=13552 Thanks Nadine, for coming, shooting, writing, and helping us raise awareness! And for getting photos out before I had a chance!! :) mcfadyena