Support for Accessing Treatment in Canada

If you would like assistance obtaining ELAPRASE treatment in Canada, please don’t hesitate to contact us and we will do whatever we can to assist.

We can join you for a meeting with your Member of the Provincial Parliament (MPP) or  Member of the Legislature (MLA) and work closely with them to ensure reimbursement for treatment is forthcoming.  We can also help you connect with other families undertaking the same processes, connect with the drug company that makes ELAPRASE (Shire Pharmaceuticals) on your behalf, and come meet with you in your home province to help support you in any way necessary.

Whatever we can do to help, we’ll be here.

If you would rather connect with us via social media, please find us on the links below:

Hunter Syndrome in Canada

 

 

CONTACT US AND SHARE YOUR STORY!

We want to hear from you! Send us your story so we can share it with the world. Every person and family battling Hunter Syndrome has a unique story to tell - one of bravery, resilience, and perseverance. We'll share all stories online here and on our social media feeds!

OUR ADDRESS

  • 5291 County Rd. 30
    Campbellford, ON
    K0L 1L0
  • (604) 317-3911
  • purcelldeb@gmail.com
  • www.theisaacfoundation.com/MPSII/
  • Charitable Business Number: 80693 0079 RR0001

Drop over to our social media streams to keep updated on the latest MPS news in Canada, including updates on research projects funded throughout the year. We'll also share your stories on our feeds and share news reports from throughout Canada!

 

SEND US AN EMAIL!