Trey has graduated!
Hello everyone! It has been a long time since my last update. This means good news. Trey continues to do well. There are little blips that come up in terms of concerns and worries, but nothing major. However, I know it is time to update when people start asking how Trey is doing and asking if we are still researching
A small update
Dear MPS II Fund supporters, It has been 6-months since I posted an update on Trey’s website and longer since I sent out an email. I apologize for my silence. So much has happened in the last year. Our family spent a year in Los Angeles so I could pursue my dream of training as a Narrative Therapist. We are
MPS II Research Grant Provided to Dr. Laura Rigon!
There has been a LOT going on in our MPS II world as of late, funding an MPS II research grant being one of the lot! Funding research provides hope, excitement, and the possibility that perhaps our sons with MPS II (including the yet to be diagnosed sons), might have a different path. We need hope like we need air.